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FSHD Nordic is a private initiative to try raise awareness in the Nordic region and prepare the local FSHD community for future trials and accelerating getting therapeutics to the market once available.
Losmapimod Demonstrates Significant Slowing of FSHD
Durability of treatment response on reachable workspace was observed among those who continued losmapimod throughout the 96-week period and those who switched from placebo. New long-term findings from the phase 2b ReDUX4 trial (NCT04003974) showed that treatment with losmapimod (Fulcrum…
FSHD NORDIC MEETING JAN 2023
Recording from the fist ever FSHD Nordic meeting, facilitated and organised by FSHD Society
Dags att förändra hur man ser på FSHD
I denna artikel tar författaren upp många viktiga frågor kring hur man ser på FSHD idag och att mycket av det är förlegat.
Vi i Norge med FSHD
Här en Facebook grupp för Norge Vi i Norge med FSHD
Vi med FSHD i Sverige
Här finns en Facebook grupp för Sverige Vi med FSHD i Sverige